News:

06/30/08: Newspaper Article

By Jessica Selva

For The Signal

Saugus resident Tom Bolewski speaks of his hope to one day ride his bicycle again. The 6-foot-1, 48-year-old former competitive cyclist and motorcycle rider also talks about what he'll eat as soon as he recovers - a Carl's Jr. Six-dollar Burger.

Although he is limited to his wheelchair and can only eat soft foods like scrambled eggs and banana bread for now, Bolewski, who became a quadriplegic after a dirt bike accident earlier this year, remains optimistic. As a longtime member of a bicycling group called the Santa Clarita Velo and a lover of other sports from dirt bike riding to snow and water skiing, Bolewski sees his recovery as just another finish line.

"I'm just going to put as much effort as I can into rehabilitating and just hoping for the best," he said.

He is not yet back on his bike or eating his favorite fast food, but he has come a long way in the past four and a half months, mostly of which has been spent at various hospitals. Just a couple of months ago Bolewski relied on a ventilator to breathe and was fed through a tube.

Since January the Bolewski family has been on a roller coaster ride of emotions, hearing different things from various doctors about Bolewski's future.

"They told me he'd be in a wheelchair, drinking with a straw," said Bolewski's wife, Kim. "They told me he'd be on a ventilator forever. They told me he'd have brain damage...

"We've had doctors saying that there is a possibility that Tom can walk someday... It depends on the doctor you talk to. So, we decide to listen to the people who think positively."

Bolewski is now off of the ventilator. He has slight movement in his hands and arms and can use them to maneuver his wheelchair and use a computer mouse. On his second day home from the hospital in late May, he moved the big toe on his left foot and then the other toes, even though he had not shown movement in that foot while at Rancho Los Amigos National Rehabilitation Center in Downey. He already had some movement in his right foot.

"What we have come to find is it seems that it depends not only on the injury and on your body, but mostly on your drive and your... motivation," Kim Bolewski said.

A former electrician and a Santa Clarita business owner, Bolewski said one of his major motivations comes from the support of the community, which banded together after his accident in a way he and his family had never expected. Since his injury friends, neighbors and strangers have raised thousands of dollars for him.

It all started after Jan. 20, when Bolewski's life changed in a split-second.

The accident

While in the middle of a yoga class in Glendale in January, Kim Bolewski received a message on her cell phone from her sister, Carrie Porter, informing her that Tom was badly injured.

Bolewski and two of his sons, Danny, 18, and Alex, 16, had joined family members and friends to ride dirt bikes at a camp site in California City in Kern County. His son Christopher, 20, was not with them.

Kim Bolewski remembers her sister saying that he was still breathing and was being transported to a hospital. Kim could tell it was serious.

"I knew it. I folded like a wet paper towel," she said. "I folded right down to the floor. I just knew it."

Bolewski had hit a rock while riding his Honda CRF450R motocross dirt bike, which sent him flying over his handlebars. He landed about 10 feet away in a small embankment. The 210-pound man with an athletic build hit the ground head-first.

Bolewski, now 180 pounds, remembers what crossed his mind after the accident.

"My first thought: I screwed up - big time," he said. "I started thinking about my family and survival. I wanted to make sure that I made it through because I knew it was bad. When I was laying there, I couldn't move."

Carrie Porter's husband and Bolewski's brother-in-law, Todd Porter, reached Bolewski just after the crash. Porter, a Los Angeles city fire captain and paramedic supervisor, delegated jobs to Bolewski's two sons and his own 16-year-old son and immediately started applying aid to Bolewski. About 45 minutes later, Bolewski was airlifted to the Kern Medical Center trauma unit in Bakersfield.

Bolewski had suffered a fracture to the fourth cervical vertebra, which paralyzed him from the chest down to an unknown level. The impact of the crash also cracked his helmet, crushing his nose, cheekbones and sinus cavities and fracturing his skull, according to one of his doctors and his family members. He underwent facial reconstructive surgery while at Kern Medical Center, during which time he suffered a collapsed lung and 106-degree fever. He later contracted pneumonia.

"He kept coming back," his wife said. "How many times I was at that bedside and they were telling me it doesn't look good... His heart was not going to stop."

Dr. Min-Ning Huang, a spinal chord injury specialist at Rancho Los Amigos National Rehabilitation Center, said Bolewski also suffered paralysis to his vocal chords. Huang said that weakened his speaking abilities and required him to get a tracheotomy, a surgery that creates an opening in the windpipe.

Bolewski spent about a month at Kern Medical Center. He then spent a few days at Valley Presbyterian Hospital in Van Nuys, where Kim Bolewski works as a surgical technician. Bolewski was then transferred to Barlow Respiratory Hospital, also located on the Valley Presbyterian Hospital grounds.

At Barlow Respiratory Hospital, Bolewski was able to breathe without a ventilator. He later moved to the Rancho Los Amigos National Rehabilitation Center in Downey for about six weeks. There he worked on speech, occupational and physical therapy, regaining some movement and his ability to swallow soft foods.

Kim Bolewski took time off of work and stayed by her husband's side for much of his four months in the hospital.

She said he never gave up. Instead, she stayed positive, making jokes and working hard at his physical therapy. His key phrases became "Game on" and "It is what it is."

"He was a hard worker before all this, so he was going to fight it out no matter what here, whatever we asked him to do," said Kristin McNealus, Bolewski's physical therapist at the Rancho Los Amigos facility. She added that, as a former athlete, Bolewski looked forward to doing his arm weight training. "He was always going to give his all at every session... He worked until he was completely tired."

Meanwhile, as Bolewski slowly started his recovery process in the hospital, hundreds of people were supporting him at home.

The support

Bolewski's injuries forced him to retire early and shut down his business, Current Electrical Services. The accident left his family in a flux, particularly his wife, who worried about how to pay for medical expenses and future physical therapy treatment, since her husband had limited health insurance.

"You have to keep doing physical therapy, otherwise your muscles will regress quickly, so he has to keep it up," she said, adding that the fundraisers will go toward those ongoing expenses. "I'm sure it'll take forever to figure out and to find out how much we're going to have to pay. I just know that Tom deserves to be at home and not [to] be in a nursing home."

It was then that the family decided they needed to raise funds for Bolewski. They called together a meeting of family members, friends and neighbors and brainstormed about what they could do. About 25 people showed up, and together they thought of ideas - a poker night, a garage sale, a community barbecue and concert in the park. Porter took charge of the support group and helped organize the ideas, since her sister was constantly with Bolewski.

"There's just a lot of people that wanted to do something," Porter said. "We just felt we needed to get all those people together quickly so we didn't lose the momentum."

Little did Porter and the Bolewskis realize just how much support they would receive over the next few months. Neighbors cooked meals for the family and gave the boys rides. The fundraising events started falling into place, and Porter received calls from strangers who heard about Tom and wanted to help.

"It's kind of amazing how far this thing has really spread. So, now we're not stopping. The ball's still rolling," Porter said.

Besides updating friends and family through CarePages.com, a Web site that allows people to post updates about sick or injured loved ones, the family also created a separate Web site dedicated to event announcements at Tomsrecovery.com.

One of the first major fundraisers was a garage sale in April, organized by a neighbor, Irma Tamayo advertised in local media for community members to donate items. Tamayo said so many people contributed that she had enough items to cover the driveways of eight houses.

"I way underestimated just how much stuff we would get," Tamayo said.

"And just start to finish, I had people coming that I never met before, people coming just to give cash, people offering to help."

The garage sale raised about $9,000 for Bolewski.

A Texas Hold'em poker tournament in April organized by Steve McAfee, Bolewski's friend and the owner of Line Drive Baseball Academy, raised another $21,000. A barbecue and park concert held in May and organized by Bolewski's next-door neighbor, Carlos Calvillo, attracted an estimated 800 to 1,000 people, who purchased about 1,300 chili dogs.

Joni Stiman, another one of Bolewski's neighbors, said her students at Valencia High School also got involved. Her peer counseling class decided to support Bolewski by selling rubber bracelets that read "Tom's Current Race." Students were soon wearing them all over campus, according to Stiman.

"Tom just became a celebrity. [The students] never met him. They had never seen him, most of them, but they became concerned about somebody in their community," Stiman said. "Once I started to explain the story or tell the story and once they got involved with it, they would just randomly ask me, 'How's Tom doing?'"

Stiman would read the students updates from the Bolewskis' Web sites.

While many students did not know Bolewski, Stiman said others recognized him from his involvement with sports activities. He used to coach soccer and football for his sons' teams. Some parents knew him through his other links he had in the community.

It was Bolewski's friendly personality, Stiman said, that contributed to the community's general readiness to support him.

"He just always would reach out and always smile, and always make you happy," Stiman said. "He's just that kind of guy, and I think that's why [there was] the spirit that he would make it no matter what... All of us said if there's anyone we know that could come out of this injury, it's Tom."

Friends describe Bolewski as a go-getter. Thomas Barron, president of the Santa Clarita Velo, said Bolewski was a lead bicyclist in the club and an aggressive downhill rider. He also wasn't one to let obstacles stand in his way.

"He's one of the only guys I ever knew that chased dogs," Barron said.

"The bane of bicyclists is having a dog chase you. Well, Tom would turn and chase the dog back to [its] house."

One thing Bolewski said he misses the most is not being able to take part in his usual physical activities.

Even though he was injured while dirt biking, he does not blame the sport for what happened to him.

"There wasn't really anything that I could have done different," Bolewski said. "It's the kind of accident or fall that just kind of goes along with the sport. It happens to everybody. I just had the misfortune of hitting a rock."

Bolewski is now receiving in-patient physical therapy for two weeks at the Northridge Hospital's rehabilitation center.

"He just called," Kim said. "He can now lift his right knee off the bed."

 

 


04/24/08: Site Update

Added info for the bbq and few odds and ends worked on.


04/10/2008: Site Update

Added New fundraisers and added new dates to the calendar.


04/08/2008: Copied from CarePages

April 08, 2008 at 07:20 AM PDT He made it. He is at the best rehabilitation facility on the west coast, Rancho Los Amigos in Downy. Tom was very happy from the first day. He is so happy to be in a place where they don’t treat him like he is sick. He gets to wear tee shirts, sweats, and in his words “man pajamas instead of a long bib with sleeves”. I started typing two hours ago and ended up with a three page informative essay on spinal cord injuries and recovery. I have decided not to post until Tom and I have a meeting with the doctors at Rancho. By Monday we will have discussed his discharge and what we need to get to that point. It’s both a relief and scary at the same time. I change my words and my mind every time I complete a sentence here. I have yet to believe a prognosis I have been given for Tom, good thing too. He would be in a nursing home in West Covina if I believe everything I heard. So, we will listen to all the doctors once again, then we will be able to make an educated decision on what will come next. With what I do know on the subject (possibly only in my dreams), I am thinking two months in Rehab, two months at home to build strength, then off to a rehab facility on the east coast where he will be outfitted with a bike, a lot of electrodes and a computer program so his work out can be monitored at home, from John Hopkins University. We will see. On the lighter side, Tom is approaching 10,000 hits on his web pages. Thank you to everyone who checks in and sends all the prayers and good energy his way. Jason has done a wonderful job at tomsrecovery.com. For the past (I don’t know how many) years, Tom and I have played poker on the weekends with friends…hello my poker friends. If you are a Texas Hold-em player we need you for our fund raiser on April 26th. Steve & Cindy McAfee have donated their business “Line Drive” in Santa Clarita for the venue. We have dinner from La Cocina and live music by the band “Frequency”, my personal favorite. We have very generous gift donations for the evening also. Please go to tomsrecovery.com for the flyer or cut and paste the following link in your address bar and send in your reservation. :o)


03/29/2008: Site Update

New fundraiser added. Front page changed a little.


03/27/2008: Copied from CarePages

March 27, 2008 at 05:29 PM PDT I wait, sometimes for days, for a good story or a bit of good news to post for our family and friends who check in on Tom. The forward progress is slow but I’m thankful that we haven’t had any set backs for weeks. He is generally in good health, his lungs are clear, no infections, no wounds. When supervised he can have a special valve put on his trach so he can talk and he can have ice chips (I got in trouble for giving him Jamba Juice.) Two days ago we found out that Tom was turned down for rehabilitation at Rancho Los Amigos. Not forever, just for now. He needs to be able to endure 3 hours of therapy a day to be accepted and he is just not strong enough yet. At first I was crushed. I knew Tom had his heart set on moving to the next stage of recovery. Now however, I see that having focus will help him move forward. He wants a chart posted of his progress. He wants to know what his goals need to be, not day-to-day but minute-to-minute. (queue up the Rocky theme song) When Todd came by to see him yesterday, Todd got him to talk for 40 minutes and that’s a personal best. Later in the day, he was put back in the cardiac chair for 30 minutes, (aka the Cadillac chair changes from a gurney to a chair) something he had not done since he was at the trauma center. We are making sure he gets physical therapy twice a day. He has to get to rehab, he WILL get to rehab because this is the road home.


03/19/2008: Fundraiser Update

Added information for the Texas Hold'em Tournament. Check out the fundraiser page for more info. Included a link to download the flyer needed to reserve your spot.


03/15/2008: Copied from Care Pages:

March 15, 2008 at 07:36 AM PDT Yesterday was Graduation Day! Tom was taken off the ventilator at 9 AM…with no plans to return! He will take it easy for three days then more aggressive steps will be taken toward removing the tracheotomy. The doctors are all walking around patting themselves on the back. I know what they were thinking when we arrived, they made it clear to me that he may not make it (well that was old news, how many time had I been told that already.) I just kept telling them that he was not your average patient. I told them that he had returned from the edge of life many times already to tell me that he would not be leaving. I told Tom about the meeting at the house on Thursday, and showed him the photos. What a great group! He was very touched by everyone’s generosity. Tom misses everyone terribly but he is still exhausted and not ready for visitors. We aren’t sure where Tom will be going to next, but once again he has made it clear he is deserving of the best. He sends his love and thanks to all of you, Kim


03/14/2008: Copied from Care Pages:

March 14, 2008 at 09:31 AM PDT First we have to tell you how great Tom is doing getting off the vent. He did 16 hours day before yesterday and we are waiting to hear if he completed is 20 hours yesterday. Power to the Brewski! Next - we had a great fund raising meeting last night. Big things are planned. 2 items already on the calendar - April 19th big garage sale and April 26 - Texas Hold'm Charity Tournament. Go to www.tomsrecovery.com for more info. This is the web site we will be using for our fund raining efforts. When you go to web site please click on forum from top menu bar. When new window opens choose register. It will then ask you to fill in a few simple questions. Once this is complete you will be notified when new fund raising activities are posted. You can also direct questions to any other web site forum members. This is another great communication tool. It is amazing how Tom's Team has mobilized. With this group of friends and family anything is possible!! Keep the positive energy flowing


03/14/2008: Website Update!!!

Added some new items to the site. Fundraiser Info now up. Working picture album and a bio page has been added. Page Counter on bottom.

 


03/11/2008: Copied from Care Pages

March 11, 2008 at 04:09 PM PDT - We are finally moving on getting some fund raising together. There are some big things in the works and we will keep you all posted. We have set up new site for communicating our fund raising activities - keep watching TomsRecovery.com. This will be our main info link. We will keep posting Tom's condition up dates to this Care Page. There is a direct link from TomsRecovery.com to the Care Pages. A big thank-you from all the family!!